Autism Background Story: The Evolution of Understanding and Acceptance

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Autism is a complex condition that affects how the brain develops. It has a long and interesting history that has changed over time. This article explores where autism comes from, its history, and how people have seen it differently throughout the years.


What is the background information about autism?

Autism Spectrum Disorder (ASD) is a complex neurodevelopmental condition characterized by difficulties in social interaction, communication, and repetitive or restricted behaviors and interests. The term "spectrum" reflects the broad variability in challenges and strengths possessed by each person with autism.


Autism's roots can be traced back to early case studies, yet its understanding has grown exponentially in recent decades. Though the specific causes of autism remain a subject of research, it's generally understood to be a result of a combination of genetic and environmental factors.


Where did autism first come from?

Autism, as a concept, has been around for centuries, though it was not always recognized or named as such. Historical records and accounts suggest the existence of individuals displaying autism-like behaviors long before the term was coined.


The term "autism" was first introduced in 1911 by Swiss psychiatrist Eugen Bleuler while describing symptoms of schizophrenia. He derived it from the Greek word "autos," meaning "self," to describe the inward-looking, self-centered characteristics observed in some schizophrenic patients.


However, it was Dr. Leo Kanner, an American psychiatrist, who, in 1943, distinctly recognized autism as a separate condition after studying 11 children showing a pattern of social withdrawal, communication challenges, and repetitive behaviors. Around the same time, Hans Asperger, an Austrian pediatrician, described a milder form of the disorder, now known as Asperger's syndrome.


What is the history of the Autism Society?

The Autism Society, initially called the National Society for Autistic Children, was founded in 1965 by Bernard Rimland, Ph.D., along with a small group of parents of children with autism. Its main goal was to provide a community and support network for families affected by autism.


Over the years, the Autism Society has been instrumental in advocating for the rights and needs of individuals with autism and their families. Their commitment has led to significant policy changes, awareness campaigns, and resource provisions, making a considerable impact on the autism community. Today, the Autism Society stands as one of the leading voices in promoting understanding, acceptance, and full inclusion of people with autism.


What was autism called 50 years ago?

About 50 years ago, which takes us to the early 1970s, the term "autism" was in use, thanks largely to the pioneering work of Leo Kanner in the 1940s. However, understanding and perceptions of autism were quite different. Many children diagnosed with autism were often labeled as "childhood schizophrenics" or "psychotic." There was also a pervasive and incorrect belief, propagated by prominent figures like Bruno Bettelheim, that "refrigerator mothers" or emotionally distant parents were to blame for their child's autism.


Moreover, Asperger's syndrome, which is now considered part of the autism spectrum, was a lesser-known diagnosis and was often referred to separately.


To sum it up, the history of autism is extensive, just like the condition itself, which has many complexities. The path from its early recognition to our current better understanding shows how crucial research, speaking up for autism, and having a supportive community are in changing how we see it and making life better for those on the autism spectrum.

Fayge Orzel • December 16, 2023
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