Autism Support Services in North Carolina

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Autism Support Services in North Carolina

Finding the right autism support services in North Carolina can be a game-changer for families, individuals with Autism Spectrum Disorder (ASD), and professionals looking for activities for autistic adults. Here's a rundown of what's available across the state.


What's Out There?

North Carolina offers a bunch of autism support services tailored to the unique needs of individuals with ASD and their families. The Autism Society of North Carolina (ASNC) helps over 65,000 people, providing a mix of services, advocacy, training, and support. They cover everything from education and employment to community living and support groups for those on the spectrum, their parents, and caregivers.


Public schools in the state have also stepped up, creating specialized programs and resources to help neurodivergent kids get a quality education and ensure teachers are well-prepared.


Where Can You Find Help?

The availability of autism support services in North Carolina can vary depending on where you are, but there are plenty of organizations and clinics ready to help. Here’s a quick look at some key players and what they offer:

Service Provider Focus Areas Contact Information
Autism Society of North Carolina Advocacy, Support Groups, Training Website
Duke Autism Clinic Assessment & Diagnosis Website
Aces for Autism Community Engagement, Resources Website
The Arc of the Triangle Developmental Disabilities Support Website

These organizations offer a treasure trove of resources and support tailored to the needs of individuals with autism. Families can check out various autism activities in North Carolina and find autism-friendly events in North Carolina to join in on the fun. Plus, there are sensory-friendly activities and autism-friendly businesses all over the state to make sure everyone feels welcome.


Autism Support Organizations

North Carolina is home to several groups that offer support and resources for folks with autism spectrum disorder (ASD) and their families. These groups are champions for the autism community, providing programs and activities that make a real difference.


Autism Society of North Carolina

The Autism Society of North Carolina (ASNC) helps over 65,000 people with ASD in the state. They offer a bunch of services, advocacy, training, and support tailored to each person and their family. ASNC's programs cover education, jobs, community living, and support groups for individuals on the spectrum, parents, and caregivers.


ASNC fights for students with autism to get the education they need, whether in public or private schools. They back teacher training programs, more special education funding, and initiatives that help parents and students choose private education options. For more info on autism services, visit autism activities in North Carolina.


Aces for Autism

Aces for Autism is another big player in North Carolina, focusing on improving lives through fun activities, sports, and social events. They create a welcoming space where people with autism can join in activities that boost social skills and community involvement.


Their programs cater to different ages and skill levels, making sure everyone can join in. Aces for Autism also teams up with local businesses and community centers to host autism-friendly events, making it easier for folks with autism to take part in community activities. For a list of upcoming events, check out autism-friendly events in North Carolina.


The Arc of the Triangle

The Arc of the Triangle supports people with intellectual and developmental disabilities, including those on the autism spectrum. They offer advocacy, resources, and programs that promote independence and inclusion.


Their services include job training, community activities, and family support programs. The Arc of the Triangle is all about improving the quality of life for individuals with autism and their families. They also provide info on sensory-friendly activities and community resources for those looking for autism-friendly businesses. For more details, visit sensory-friendly activities in North Carolina and autism-friendly businesses in North Carolina.


These organizations are key in providing autism support services in North Carolina, helping individuals with autism and their families tackle challenges while promoting growth and engagement within the community.


Healthcare Coverage for Autism

Getting the right healthcare coverage for autism is a big deal for folks with Autism Spectrum Disorder (ASD) and their families. In North Carolina, there are several programs and rules that help make services and financial support available.


Medicaid Coverage

Medicaid is a lifesaver when it comes to autism services in North Carolina. For kids under 21, autism services are covered under the Early and Periodic Screening, Diagnostic and Treatment (EPSDT) benefit. This means necessary treatments and therapies are accessible without breaking the bank. Recently, Medicaid got the green light for Research Based – Behavioral Health Treatment (RB-BHT) for folks over 21, starting July 1, 2021.

Coverage Type Age Group Coverage Details
EPSDT Under 21 Comprehensive coverage for autism services
RB-BHT Over 21 Coverage for behavioral health treatments

State-Specific Programs

Besides Medicaid, North Carolina has some state-specific programs that help with the costs of autism services. The State of North Carolina Health Plan covers up to $36,000 annually for state employees and teachers. Tricare also offers services for autism, giving military families a broader support network.

Program Coverage Amount Target Group
NC Health Plan Up to $36,000 State employees and teachers
Tricare Varies Military families

Private Insurance Regulations

Private insurance in North Carolina has its own set of rules for autism services. Coverage is required for individuals 18 and younger, with annual caps set at $40,000, adjusted based on the consumer price index. But not all insurance companies follow this rule, and there might be extra costs like copays and deductibles.

Insurance Type Age Limit Coverage Cap
Private Insurance Under 18 $40,000 annually
Medicaid Under 21 Comprehensive coverage

Knowing what healthcare coverage is available in North Carolina for autism is crucial for families looking for the right support and services. For more resources on autism activities and events, check out our articles on autism activities in North Carolina and autism-friendly events in North Carolina.


Educational Support for Autism

North Carolina has a bunch of educational support services for folks with autism, covering both public school programs and non-public education funding. Plus, places like the Duke Autism Clinic are a big help for students on the autism spectrum.


Public School Programs

North Carolina has really stepped up its game to make public schools more autism-friendly. Schools have rolled out special programs and resources to support neurodivergent kids. They’re serious about quality education, offering teacher training and resources tailored for students with autism.



Here’s what they’ve got going on:

Feature What It Means
Specialized Programs Custom-made programs for students with autism.
Teacher Training Ongoing training for teachers on autism education strategies.
Resource Accessibility Resources to help students and families.

Non-Public Education Funding

If you’re thinking about private school or homeschooling, North Carolina has three funding programs for K-12 students. These programs have different application processes and eligibility rules, with two aimed at students with significant disabilities.


Keep in mind, students in private schools might not get the same educational rights under federal IDEA laws or state special education laws. Private schools can create personalized education plans, but they don’t have the same legal backing as an IEP or 504 plan.

Program Type What It Means
Scholarship Programs Financial help for families choosing private education.
Eligibility Criteria Specific requirements based on the student's disability.
Application Process Different for each program, some for students with significant needs.

Duke Autism Clinic Services

The Duke Autism Clinic is a lifesaver in North Carolina, offering specialized services for people with autism. They provide thorough assessments, therapeutic interventions, and support for families navigating the educational maze.


Here’s what they offer:

Service What It Means
Comprehensive Assessments Evaluations to figure out each individual’s needs.
Therapeutic Interventions Evidence-based strategies to support learning and development.
Family Support Guidance and resources for families to advocate for educational needs.

These educational support services make learning better for individuals with autism in North Carolina. Families can also check out autism activities in North Carolina and autism-friendly events in North Carolina to complement their educational journey.


Community Resources for Autism

Living with autism in North Carolina? There are some fantastic resources out there to make life a bit easier for you and your family. Let’s break it down.


ABLE Accounts: Saving for the Future

The Achieving a Better Life Experience (ABLE) Act of 2014 brought us ABLE accounts. Think of these as special savings accounts for families with disabilities. They let you save for long-term needs without messing up your eligibility for benefits like Medicaid and SSI.

Feature What It Means
Tax Perks Money grows tax-free, and you don’t pay taxes on withdrawals for qualified expenses.
Contribution Cap You can stash away up to $15,000 a year.
What You Can Use It For Education, housing, transportation, health care, and more.

Setting up an ABLE account can give you peace of mind, knowing you’re planning for the future without losing out on essential benefits.


Community Action Agencies: Help When You Need It

Community Action Agencies are nonprofits funded by the state and federal government. They offer a variety of programs to help low-income families. Whether you need help with rent, utilities, food, or emergency assistance, these agencies have got your back.

Service What It Does
Rental Assistance Helps cover housing costs to keep you from becoming homeless.
Energy Assistance Provides funds to pay utility bills, keeping your home safe and comfortable.
Food Programs Gives you access to food resources when you’re in need.

These agencies are lifesavers for families struggling financially, making sure you have access to the basics.


Support for Developmental Disabilities

North Carolina offers several programs to support individuals with developmental disabilities, including autism. Medicaid Waivers, like the 1915(c) Home and Community Based Services Waiver, provide essential services to help people stay in their homes or communities.

Program Benefits
NC Intellectual and Developmental Disabilities Waiver Helps individuals live independently and access community resources.
Health Care Access People on the Waiver are 31% less likely to use Emergency Departments, showing better health and preventive care.

These programs can significantly improve the quality of life and health outcomes for individuals with autism. For more ways to get involved and find activities, check out our resources on autism activities in North Carolina and autism-friendly events in North Carolina.


Waivers and Waitlists

Getting the right support for autism in North Carolina can feel like a maze. Let's break down the key waivers and the waitlists that come with them. We’ll focus on the North Carolina Intellectual and Developmental Disabilities Waiver, also known as the NC Innovations Waiver, and the headaches that come with the waitlists.


North Carolina Intellectual and Developmental Disabilities Waiver

The NC Innovations Waiver is a lifeline for folks with developmental disabilities, including autism. It aims to help people live more independently and get the support they need in their communities. But here's the kicker: not everyone has the same shot at getting it. Research shows that people from racial and ethnic minority groups and those in rural areas are less likely to receive this waiver. Non-Hispanic Whites have a much better chance of getting it compared to others.


NC Innovations Waiver

This waiver offers a bunch of support services like personal care assistance, home modifications, and respite care. But the catch? There are only so many slots available, and they don’t open up often. The waitlist for the NC I/DD Waiver is one of the longest in the country, with over 14,000 people waiting. The average wait time? A brutal 7 to 10 years.


Waitlist Challenges and Implications

The long waitlist for the NC Innovations Waiver is a real pain for families and individuals who need support. Waiting 7 to 10 years for critical services can be a nightmare, especially for kids under 18, who are 61% less likely to get the waiver compared to adults over 21.


Families stuck on this waitlist often deal with extra stress and uncertainty about the future. While they wait, they might look for other resources like autism activities in North Carolina or autism-friendly events in North Carolina to support their loved ones. Knowing these challenges helps families aim for the best possible outcomes for individuals with autism.

Fayge Orzel • July 30, 2024
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